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philippabaines
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Join date: Sep 1, 2025
Posts (8)
Mar 4, 2026 ∙ 4 min
Mac's Vulvodynia Research
Teresa Cullen – Researcher Introduction: Vulvodynia affects millions of women, yet it remains underdiagnosed and often misunderstood. Many people live with the pain for years without a diagnosis or answers. Right now, there are no approved treatments in the UK specifically for vulvodynia, which is why research like this is so important. By taking part in clinical trials, volunteers help scientists understand what does and doesn’t work and help move us closer to real solutions. Q1: Can you...
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Feb 25, 2026 ∙ 1 min
Help Update NHS Thrush page to prevent Vulvodynia
There is no cure for chronic nerve pain, therefore our only power is in prevention. Women cannot be empowered to prevent vulvodynia if Doctors and the healthsystem are not highlighting the causes. Please help me update the NHS thrush page to include a warning about the link to vulvodynia. Select I want to report a mistake https://www.nhs.uk/give-feedback-about-the-nhs-website/ Max character 500. Patient Request: The NHS thrush page should be reviewed to clearly highlight the link between...
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Jan 12, 2026 ∙ 4 min
An Open Letter to the NHS
This is an open letter to the NHS, No woman should have to live with 24/7 burning genitals. 24/7 burning genitals with no known cure. Pain so bad you cannot work a full-time job, have to give up your dreams of having a family and have daily regrets being born a woman. And yet here I find myself sitting on an ice pack giving you this message. All because the system doesn’t take thrush seriously. There is a well-documented association between thrush and vulval nerve damage leading to...
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